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Baseline

ALPIMS β€’ EVERYDAY CAPACITY

Finding your baseline

Find what is manageable. Adapt life around it. Expand when possible. Accommodate lasting needs.

One small step is enough. You can open just the section you need.

Sunflowers beside a cup on an outdoor wooden table
Your baseline is a guide to your current capacity.

It includes what you can manage with support, the recovery you need, and how you feel afterwards. It is not your maximum on a good day or a measure of your worth.

Capacity can vary. Adapting, expanding and accommodating can happen together; they are not stages you must pass through.

What would help right now?

1. Find it β€” what is manageable?

Start with one ordinary activity. Think about washing, a conversation, preparing food, reading or leaving home.

  • What can I manage with my usual support?
  • What happens during it, afterwards, and over the following days?
  • What rest or help makes it more sustainable?

Notice physical, mental, emotional, sensory and social effort. Look for a pattern across different days. Brief notes are optional; someone can help you notice.

Try this: β€œI can usually manage ___ when ___ helps. Afterwards I need ___.”

2. Adapt to it β€” make today more manageable

Change the task, timing, environment or support to fit your current capacity.

  • Make a task smaller, sit down, or ask someone to share it.
  • Reduce noise, light, smells, interruptions or decisions.
  • Plan rest and allow recovery between demands.
  • Choose one priority and postpone something less urgent.

Try this: β€œThe easier version of this task is ___.”

3. Expand it β€” when possible and appropriate

Expansion is optional and should fit your condition, goals and response. It might mean more choice, connection or participation through better support, as well as a change in capacity.

  • Choose something meaningful to you.
  • If appropriate, try one small, flexible change with recovery time.
  • Review how you feel afterwards, including delayed effects.
  • Reduce or stop the change if symptoms worsen; seek condition-specific advice.

There is no required timetable or automatic increase. Keeping life sustainable is a worthwhile outcome.

If you experience post-exertional malaise (PEM)

For ME/CFS, activity should stay within individual energy limits and be adjusted flexibly. Fixed increases and pushing through symptoms are not recommended. Discuss changes with a clinician familiar with PEM.

Read NICE guidance on ME/CFS
4. Accommodate it β€” support lasting needs

Some conditions and disabilities involve ongoing or fluctuating needs. Long-term accommodations can protect wellbeing and make participation possible, even while treatment or recovery continues.

  • Keep helpful sensory adjustments and predictable routines.
  • Use assistive tools, accessible spaces or mobility supports when appropriate.
  • Arrange ongoing practical help and flexible work or study expectations.
  • Agree on communication, rest and support needs with others.

This can be relevant to lifelong neurodevelopmental differences, persistent disability and some chronic illnesses. Needs are individual and can change.

Try this: β€œEven on a better day, I still need ___.”

Support does not have to be removed to prove improvement. Accommodation is a valid goal in its own right.

Look at the whole ALPIMS picture

Capacity can be affected by several overlapping parts of your experience. These prompts help you notice what may need support; they do not diagnose a condition.

What may be affecting my baseline?
  • Anxiety & autonomic: feeling on alert, dizziness or difficulty being upright.
  • Laxity / connective tissue: joint discomfort, instability or effort needed for everyday tasks.
  • Pain / bodily sensitivity: pain, migraine or other symptoms competing for capacity.
  • Immune / inflammatory: illness or symptoms needing assessment and condition-specific care.
  • Mood / mental health: low mood, trauma responses or emotional strain.
  • Sensory / neurodevelopmental: sensory overload, communication demands or executive function needs.

Sleep, nutrition, environment, relationships and the amount of practical help also matter. A new or sustained change deserves medical review rather than being assumed to be your new normal.

How this fits with ALPIMS support

Rest β€’ Reduce β€’ Regulate

Make room for recovery, reduce demands and choose supports that help you settle.

Pace β€’ Expand

Fit activity to current capacity. Explore meaningful possibilities when appropriate, keeping accommodations in place.

One small step today

Choose one task that feels too costly. Make it smaller, change the setting, or ask for help. Notice whether the change helps afterwards.

You do not need to find a perfect baseline before you deserve support.

Baseline worksheet β€” Coming soon

Educational information, not a diagnosis or individual treatment plan. Baseline is used here as a practical ALPIMS planning concept, not a validated clinical measure. Seek professional assessment for new, worsening or unexplained symptoms. Rehabilitation and activity advice should be tailored to the condition and person.