One resource we found helpful when learning about central sensitisation and overlapping conditions was the Complex Chronic Disease Program.
They share practical strategies for self-management, pacing, nervous system regulation, and living with complex chronic illness.
Many of the ideas align with approaches we eventually used in our own home — focusing on reducing overload, pacing energy, and supporting the nervous system.
Brain fog:
Sexual health:
- Sexual Health Rehabilitation Service – Blusson Spinal Cord Centre
- Sexual Health Rehab Service GF Strong Rehab Centre
Energy management:
- What is pacing (PDF)
- How to pace (PDF)
Parenting and caregiving:
- Feeding strategies and practical tips (PDF) to manage family meals when living with complex chronic diseases
- Pacing and parenting strategies (PDF) when when living with complex chronic diseases
Sleep:
Staying active:
- Manage Orthostatic Intolerance (PDF)
- Returning to physical activity (PDF)
- Exercise for Dysautonomia
- Setting Exercise Expectations for People with ME/CFS
- Gentle Movement (Pain BC)
- Heart Rate Monitoring to Stay Inside Your Energy Envelope
- Determine Your Exercise Tolerance
Work accommodations and return to work:
- Myalgic Encephalomyelitis or Chronic Fatigue Syndrome and Risk of Post Exertional Malaise from Functional Capacity Evaluations Statement Letter(PDF)
- Recommendations for Employers, Insurers, Human Resource Personnel and Rehabilitation Professionals on Return to Work for People Living with Long COVID (and Other Episodic Disabilities) (PDF)
Other resources and websites:
- Cognitive Impairment in FM and ME/CFS (PDF)
- ME/FM Society of BC
- National ME/CFS Action network
- ME Action Network
- emerge Australia
- People in Pain Network
- Pain BC
- ME/CFS and Fibromyalgia Self-help Program (CFIDS)
- Online Community Resource Guide (PDF)
If you are also experiencing any functional Neurological symptoms like
- non epileptic seizures
- jerks and twitches
- visual disturabance
- Speeh and swallowing difficulty
- persistent dizziness
- persistent Cognitive Symptoms
Not adequately explained by other concerns
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