Assessment Preparation Checklist
Adult Autism Assessment Preparation Checklist
🧠 1. Self-Reflection Before the Appointment
✅ Reflect on why you’re seeking an assessment:
- Self-understanding?
- Access to supports (e.g., NDIS)?
- Validating lifelong struggles?
- Planning better health, work, or relationships?
✅ Write down a few sentences about what diagnosis would mean to you (optional, but can ground you emotionally).
📚 2. Gather Personal History Evidence
✅ Childhood Development
- Early communication patterns (speaking early/late, echolalia, literal thinking?)
- Play behaviors (prefer solitary play? repetitive play?)
- Sensory traits (picky eater? hated tags, loud noises?)
✅ Education and Schooling
- Struggles with group work, classroom overwhelm, bullying?
- Special interests that were intense and absorbing?
- Issues with executive functioning (organization, deadlines)?
✅ Social History
- Difficulties forming/maintaining friendships?
- Masking behaviors (copying others, mimicking social scripts)?
- Preference for online/text-based communication?
✅ Employment History
- Burnout from work environments?
- Struggles with change, sensory overload at work?
- Need for routine and predictability?
✅ Daily Life Functioning
- Emotional regulation challenges (meltdowns, shutdowns)?
- Rigid routines, difficulty adapting?
- Sensory sensitivities (noise, light, clothing, smells)?
✅ Mental Health History
- Anxiety, depression, OCD traits, PTSD?
- History of being misunderstood by therapists or misdiagnosed?
📝 3. Complete Any Self-Assessment Tools (Optional but Helpful)
✅ Autism Quotient (AQ)
✅ RAADS-R (Ritvo Autism Asperger Diagnostic Scale – Revised)
✅ CAT-Q (Camouflaging Autistic Traits Questionnaire)
(Bring your scores or reflections if you like, but not mandatory.)
👤 4. Prepare a Timeline or Written Summary
✅ Prepare a simple life timeline or bullet points highlighting:
- Childhood examples
- Adolescent examples
- Adult examples
that show consistent autistic patterns across life stages.
✅ Keep it simple, concrete, and real (e.g., “I covered my ears at birthday parties because noise hurt” not just “I was sensitive”).
🧘♀️ 5. Prepare for Sensory and Emotional Comfort During the Appointment
✅ Bring:
- Noise-canceling headphones if waiting rooms are noisy
- Fidget tool or soothing object
- A written sheet to hand to the assessor if verbal expression becomes hard
- Water, snacks (especially if sensory-safe foods help calm)
✅ Practice self-kindness: It’s okay to get overwhelmed, shutdown, stim, or need breaks during the process.
🗣 6. Know What to Say and Ask
✅ Explain if you mask heavily — describe the exhaustion that follows social interaction.
✅ If needed, tell them upfront:
- “I find talking about myself difficult.”
- “I may need time to think before answering.”
✅ Bring questions you want to ask, like:
- “How will you ensure this assessment considers masked autism?”
- “How will trauma history be differentiated from autistic traits?”
🛡 7. Know Your Rights
- You don’t have to answer anything that feels invasive or irrelevant.
- You can ask for a sensory-friendly environment or breaks during long assessments.
- You are allowed to bring a support person (friend, family, advocate) with you.
🌟 Bonus Tip: Create a “Strengths and Needs” Summary
✅ Highlight both your struggles and your strengths.
For example:
- Strength: Strong pattern recognition
- Need: Struggles adapting to unexpected changes
This shows your full picture — not just deficits.
🧩 Summary of What to Bring:
✅ Personal timeline or bullet points
✅ Any self-assessment questionnaires
✅ Comfort items (headphones, fidgets)
✅ List of key struggles + examples
✅ List of questions you want to ask
✅ Optional support person
🔎 Is it Worth Getting a Proper Autism Diagnosis as an Adult?
Short answer:
✅ For many people, yes — but it depends on what you want, need, and where you are in your journey.
🌿 Potential Benefits of a Formal Autism Diagnosis
Benefit | Why It Matters |
---|---|
Self-Understanding and Validation | It can explain lifelong struggles and differences — “There was never anything wrong with me, just a different brain.” |
Access to Supports and Accommodations | Formal diagnosis may unlock NDIS access, workplace adjustments, therapy funding, and housing supports. |
Better Mental Health Care | Therapists, doctors, and psychiatrists can tailor trauma, anxiety, or burnout treatments with autism in mind. |
Community and Belonging | Finding neurodivergent spaces and realizing you’re not alone can be deeply healing. |
Relief from Misdiagnosis | Many autistic adults were misdiagnosed with just anxiety, depression, BPD, ADHD without seeing the full picture. |
Empowerment for Future Planning | You can make decisions about pacing, sensory supports, work, and relationships knowing your true needs. |
🧠 Challenges to Consider
Challenge | Why It Matters |
---|---|
Cost | Adult assessments can be expensive (sometimes $1500–$3000+ privately). Public waiting lists are long. |
Validation Isn’t Always Guaranteed | Some clinicians still misunderstand adult, late-identified, masked autism — especially in women, nonbinary people, minorities. |
Emotional Processing | Getting a diagnosis can open deep feelings: grief for the struggles you faced unsupported, anger at misunderstandings, relief, pride, identity shifts. |
Stigma and Disclosure Decisions | You control who knows. Some workplaces, family systems, or cultures still carry outdated views. You’ll have to decide if, when, and how you disclose. |
📋 Good Questions to Ask Yourself First
- Am I seeking diagnosis mostly for self-understanding?
- Do I need a diagnosis to access supports (NDIS, workplace accommodations, mental health therapy)?
- Would a diagnosis help me forgive myself, unmask safely, and plan life around my true needs?
- Am I emotionally ready to navigate mixed reactions from others if they arise?
- Would it feel empowering to claim my neurodivergence openly?
✅ If you answered yes to even some of these, seeking a diagnosis might be very worth it — even if you take it slowly and on your own terms.
🌟 Alternatives to Formal Diagnosis (if Not Ready Yet)
Option | What It Offers |
---|---|
Self-identification | Many people identify as autistic after careful research and resonate with the community — even without a clinical label. |
Screening Tools | Tools like the RAADS-R, CAT-Q, and Autism Quotient (AQ) can guide personal understanding. |
Support without Formal Label | Some therapists and groups work neurodivergently even without formal documentation. |
Pacing into Formal Assessment Later | You can prepare gently: research, self-assess, find autism-informed providers, and apply when you feel ready. |
🌈 Summary
- A formal diagnosis can be deeply validating and practically helpful, especially for getting supports like the NDIS.
- It’s a personal choice: no one else can tell you what you need.
- Diagnosis is not about proving anything to others — it’s about empowering yourself with the truth about your brain and your needs.
🌷 If You Choose to Pursue Diagnosis:
✅ Look for autism-informed providers who understand masked, late-identified, divergent-presenting autism (especially in women, LGBTQ+, people with overlapping trauma histories).
✅ Prepare a personal timeline of sensory, social, emotional, and cognitive patterns across your life to help the clinician see the full picture.
✅ Bring someone supportive with you if possible for emotional safety.